Showing posts with label Parenthood. Show all posts
Showing posts with label Parenthood. Show all posts

Techschooling

 I am within that lovely "Xteneal" generation but the cusp of the "tech native" generation. When I was growing up it was odd for someone to have a computer in their home, but I grew up in the home of a computer programmer.  Most of my friends and the people I graduated with are not tech natives.
  It is interesting to me how frequently people talk about rules on technology but for me they are natural.  No screens in bedrooms, computers in public spaces, hiding passwords, etc.  
 So for me to include technology within my homeschooling was just as natural a breathing.  Lil C used to watch YouTube videos in the NICU, much to the horror of some of the nurses. 
As he grew we found new tools to teach and connect.  Technology has been his favorite of tools but there were less electronic tools as well.  


As he has grown we have regularly had to reasses our tools and methods, some more effectively than others.  
The past few years we have been using an iPad but this Christmas we changed to Amazon Fires.  
We are still learning what works best for us with the new tablets.  


The one thing that has remained rather consistent is the use of YouTube to teach new concepts. Daddy C figured out how to set us up with YouTube on our TV making sibling rivalry less of an issue when they are not fighting to watch a tiny screen.
Each week I set  a playlist for each day an the topics we will be covering that week.  For a sneak peak at our  week: 

If you checked those links often you would notice certain reaccuring channels such as 
Homeschool PopArt Hub for Kids,Have Fun Teaching, Jack Hartman, SciShow Kids and others.  

With Lil'C requiring EXTREME repetition, this allows for that without driving me insane, due to his TBI he tends to need to memorize before he can understand.  
This also means that should we need to school can be accomplished anywhere.  Including during a EKG.. and has.  Many. Many. Times. 



Some of our favorite apps:
ALL of the
Originator Apps and were the first apps added to the new tablets, I didn't even buy them before checking for combabtibility. Doodle Buddy

To name a few.  We have also been working on Google Docs and a few Dupelo apps as well.  

We are constantly updating and trying out new apps,  even more so with the new tablets.  Some transitioned and unfortunately some are not compatible with the new tablets.  

What apps do you with your kids?  Do they have their own devices, use yours or are not allowed devices at all? 

New Hurtles on our Journey

The past few months Baby C and I have been battling a new hurdle for me... Tongue Tie... 
Seriously! What's next?   Thankfully I have a very supportive partner and that has made all the difference with all of the hurdles that have come my way.
A few months ago I was getting a little worried about Baby C's weight gain.  I kept looking for the fat rolls that weren't coming.  I looked at pictures of his siblings at his age and noticed Baby K didn't have any rolls then either, which should have been more of a warning since she has a lip tie.  Around this time I also noticed a groin hernia and he seemed to be a bit fussy. We went into the Ped to discover that at 2 months he had only gained 1 lb since birth.  




This sent us both into a panic, so much so that her first suggestion was to put him on formula.  She knows me, and knows how I feel about formula.  I also knew that my milk was not the issue.  I called the IBCLC that day and set up an appointment.  Until we could meet I "Triple Fed", this meant feeding one side while pumping the other, swapping sides and then bottle feeding whatever was pumped.   This was a long exhausting process.  Especially with the older 3 running around and attempting to get school work done.  At one point I actually broke my hand pump, and once I had my old electric double pump.. I was attached to the wall for at 15-30minutes every 3-4 hours.  
I met the IBCLC at the Pediatric Dentist's office where both confirmed the tie. Baby C was diagnosed with a Stage 3 Posterior Tounge Tie.  He wasn't getting much milk transfer from latching and would spit up much of what he did get.  
The Dentist suggested we go see a Speech Therapist for evaluation and therapies for the tie, which was made easier since Lil C already has weekly therapies.  Baby C was also getting weekly weight checks and his weight had been slowly increasing thanks to the triple feeds, but the stress and exhaustion of the feeds did make me consider formula a few times. 


Meanwhile we had the appointment about his hernia.  The Surgon didn't really see a tie but assured me that he could do that too when he did the repair.  Good news right? Instead of being awake he could be asleep and we could deal with all the painful stuff at once.
After he came out of the hernia repair the surgon informed me that he had had 2 hernia (both now repaired) and that he couldn't get a Pediatric ENT to come look, but the plastic surgeon looked at it and he didn't think it looked like a tie either, so he didn't clip it.  I almost broke down in tears.  I informed him that his problem wasn't length but that it was to thick.  "Besides he doesn't have any weight gain issue."  I managed not to smack him. But I all but yelled at him that he was only gaining weight due to the triple feeds.   He suggested we see a pediatric ENT or a Speech Therapist.  When I told him we had seen a Pediatric dentist and a Speech Therapist he asked what she said.. and when I curtly replied that she confirmed it... well the look on his face can only be described as "Cat got your tounge" 
After Baby C healed from the repair I was hoping he had gotten big enough and strong enough (like Baby K did) that he didn't need all the triple feeds, I started slacking.. and at his weight check, his weight had slowed way down.   So I scheduled the clip with the Pediatric Dentist.  
He didn't fuss to much and for the first time he fully drained me and barely spit up.  Plus the spit up was mostly clear.  Since the repair a week ago he has gained 1 lb and gotten back on the growth curve.  His spit-ups aren't every feeding and most of the feeding anymore.  And best of all, he finally has fat rolls.  


Happy World Breastfeeding Week Ya'll! 

Pneumonia.. again.

I'm such a slacker...
I'm having camera issues, plus we are moving.. again, plus we had a nice 5 day hospital stay, days after reading this.. I'm so behind.

Asleep in the ER
So Lil'K got a runny nose, that came along with a lovely fever.  As soon as she started showing symptoms.. we made sure our Emergency bags were prepped and ready to go, we knew it was only a matter of time until Lil'C would get it too.
Two days later he started showing symptoms.  The day after that she had a nice fever and he went into the 100s (at night) so we called the Ped and had them seen (Monday).  They were both rather chipper at the appointment and Lil'C's lungs were pretty clear with mild "crackling" (yes, that is a medical term) in his upper lungs.  By Wednesday Lil'C's fever had spiked to 103.8 (again at night) and his runny nose had turned green, Lil'K was almost finished with a very slight clear runny nose.  Her's had actually never changed colors.  By noon we were packing up and heading to the hospital, which took longer than expected since we were out of practice.
What's a bored little girl to do?   Drive an IV pole like a car, that's what.
We had cranked his O2 up to 1.5L from .5 and when we got there they had to crank him up more.  For a few days he was actually at 5L!  He ended up needing steroids since it was a viral pneumonia.  They also put him on antibiotics, even though they don't do anything for viral, to protect him from a secondary infection while his immune system was weak.  

3G Geek. IPad Boss
Thankfully this time it was only lungs and no heart issue.
He had to have nebulizer treatment and something we had never had before... IPPB.  If you have no clue what that is, like myself...  It is kind of like a nebulizer except it oscillates.  It sounds like a train and has to be held on tightly.  Hubby had to hold down Lil'C for each treatment every 4 hours.  We all hated it... but it worked.  It broke up the gunk in his lungs and he went on the mend.
So we now have a ton of meds, but he is feeling much better and getting back to his old self.  His toes, fingers and lips have stopped turning purple when he pulls off his O2 for to long.  He is also back to only wearing it when he sleeps, which is nice. 
We were also in the middle of potty training when all this hit and it kinna triggered a regression.  We are slowly getting back to where we were.  Speaking of which... does anyone have any hints for teaching a toddler to pull his own pants up and down when he has poor movement on one side??  

(Days later)
Seriously slacking on the blog..
Lil'C is back to his normal O2 and meds.  Although I added a probiotic (this one) once he got off the Antibiotic, thanks to a suggestion from Kate.. and I think he has really been needing one.  I think he has been on so many really strong Antibiotics throughout his life that it has pretty much destroyed his gut flora. 
Since he started solids he has had trouble gaining weight.   I'm thinking all of the antibiotics are part of the issue.  Breastmilk naturally contains probiotics and whenever I would get serious about giving him yogurt he would gain some weight.. now with this probiotic he is obviously putting on weight and growing.  He has chubby cheeks again, has finally outgrown all his 18mo (yes my 3yo has been wearing 18mo) clothes and is suddenly able to reach things he wasn't able to when we got back.  It is really kinna crazy.  I need to look at his discharge papers to see if  I can find a height and weight to compare it too.
See the cheeks? He is saying "vroom"

So... 2 Questions for all ya'll....  Any help on the potty training with a weak side?   Have you seen a sudden health change after starting probiotics in someone you know (or yourself)? 

What we have been up to..

Wow.. So it has been awhile since I have posted. I have felt kinda weird posting lately since after Lil'C's birth (almost 3 years ago!!) this kind of turned into a NICU/hospital life blog. I guess it is time to turn it more towards its original intention which was actually a journal, mostly for my projects. So we shall see how it morphes now. Piano play at Thanksgiving

Cabbage Patch Doll Hat

Baby's first wigSo I have made the only piece of k's costume that I need to make for this Halloween. It's a cabbage patch doll hat! And it is crazy easy!

One of those days

Today is just one of those days, one of those "life isn't fair" days. I'm frustrated, so that just makes it worse.
I have been watching my niece, who is 9mo (6G) younger than Lil'c, during the day. The comparison just makes his issues all that more obvious. At his age, he should be talking, verbally. We use sign to communicate since the brain cysts damaged his ability to express verbal language and has a rather large vocabulary. About 65 signs. She signs some because he does, but she does have words. She actually prefers sign since it is easier at her age. He used to have words.. He used to say "mama", "ah-ma" (grandma), "Ning-ning" (daddy, he made that noise when Lil'c would beep his nose) and a few more that I have on the list on the fridge that I can't even look at anymore. He lost them all when the scaring hardened around the cyst.
Most of his signs are so similar, because of his lack of dexterity due to the cysts, that he is hard to understand. BALL, YEAH, BOOK, CRACKER, COOKIE, ALLIGATOR, BEAR, and blanket all look like MORE. Hers are perfectly articulated, she even gives a "well, duh" expression when she does sign, which is cute.
He falls frequently while she climbs EVERYTHING. His O2 also gets caught around furniture and he gets stuck, while she flutters about the room. She puts stickers everywhere, he can't get them off his hand. She loves to color and make fantastic scribbles, he makes tic marks.
He has to take meds around the clock while she took some earlier today for a bug bite.
For her the O2 tube is a fun and interesting toy, for him an annoyance.The annoyance
Her only scar from an accident where she fell down.. His scars.. All from surgery.
Her legs are twice as thick as his and she is already taller, but we are both shorter than her parents, so she probably would have been anyway.
If she is the slightest hungry, she lets me know. He never does, I think he thinks it is normal. I just give him snacks when I give her snacks now.
His 6mo baby sister, Lil'K, almost eats with a spoon as well as he does.
Sometimes the comparisons and the feeling that "life isn't fair" hits you like a ton of bricks, even 2 years after he came home. Today is just one of those days. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Family of 4

A week before
Well lil'k made her appearance before the end of February.. Barely.

During reading bedtime stories to lil'c I felt a pop, similar to sitting on a balloon. I stopped and waited a second thinking she had either head-butted my pelvis or my water had broken, when nothing happened for a second I figured it was a head butt and went back to reading.

Then someone peed in my pants..

Extreme Pumping

ACK found this waiting in my Draft pile!!

I recently read a post on babycenter by the author of Kitchen Stewardship, which I LOVE! It was about the strange places she had nursed a few I haven't done, my son was in the NICU during my 6w PP visit and I don't like baseball. But a few I had done and hadn't really thought much of them. Once he came home Nursing-in-public (NIP) wasn't something I thought about doing or not doing, I just did.

Still Cookin'!

Well today I am 27weeks and 2 days pregnant!!!!!!!   I am further than I got with Lil'C who was born at 27weeks 1day.  So to celebrate... Coupon code for my etsy shop for my readers!!
I'll leave it till Lil'K makes her appearance or..I run out of stock, whichever comes first.









Etsy Link:  StitchinFrog
Coupon Code:  KeepCookin

Avoiding NICU head aka Plagiocephaly

Image from Here with tons of info for the medical people.A more severe version go here and for the same thingsI'm saying but in doctor speak, go here.
You maybe asking yourself...  what is NICU head or Plagiocephaly?  It is where the skull gets misshapen due to being in the same position for extended periods of time. It is very common in preemies/long term NICU residents, but is becoming more common in termies as well.

I have been promising this post for awhile and have finally gotten to it!  YEAHHH  to having interwebs again!
Now I have to start off with some basic info....  I am NOT a medical professional, but I am the Mom of a NICU grad.  A long term NICU resident. We were in the NICU for 5.5 months (figured out the other day.. 170+ days).  In our NICU plagiocphaly was EXTREMELY common.  The fact that we managed to leave the NICU with a "normal" skull shape was amazing to many of the medical professionals there, and has inspired some changes in our NICU.

The first signs of NICU head. Lil'C was only a few days old.
So how did we avoid NICU head?  One way is that our nurses rocked and let us know about it.  Another is something I have said before... the greatest asset a NICU child can have is their parent(s)!
A parent gives a unique perspective on the medical interventions.  A parent will notice if their child's head has been in the same spot over 24hrs, which you should point out to your nurse(nicely!).
Even when we were barely allowed to touch him we could still make sure his head got turned side to side daily. We even got center when we started to notice him showing signs of NICU head, which is when we got really serious about finding out how to avoid it.
In the beginning there wasn't much we could do. But we did start letting the nurses know at each shift change about when the last time his head was turned. We made sure his head was turned every 12 hrs (each  shift change). They are supposed to do that anyway but nurses have so much to keep track of, and I would rather they focus on the other things.
The blanket roll method



The blanket roll method with an extra light sheld
One of the other parents told us about Early Intervention and we started asking the medical people about it, but it was early on and we were told that there wasn't anything EI could do for us that early.   We did have one awesome nurse who came up with the blanket roll method.
The blanket roll method requires many receiving blankets.  We used two as sheets to cover the mattress in the isolate. One rolled into a tube on either side another rolled at his feet.  Another blanket was laid over the top of all of these creating a little nest. A cloth diaper and/or scrap of faux fir was placed under his head as a pillow.
The idea was to basically swaddle him/mimic the confinement of the womb as much as we could since he missed those last 3 months in utero.  We baised this idea off of Dr.Sears  (oops... read both books at the same time)  Dr. Karp's "Forth trimester" theory, we figured if it had proven helpful for termies it should really help someone who had missed the whole third trimester.  He stayed a lot calmer after we did, plus it helped avoid NICU head. we still had to make sure his head was turned at least every shift change, but not being on a flat surface helped.
In the beginning we were barely be able to touch him, so the great thing about the blanket roll method is that the nurses were able to do it whenever they had to change his bed anyway.  That way he wasn't disturbed unnecessarily.

Christopher with his EI happies. Froggy pillow under his head and snugglie wrapped around him
Later on we were able to finally get Early Intervention to come in, unlike EI when you are at home they don't actually touch/play with the baby.  They bring HAPPY things!  Bendies, Frog pillows and snugglies.  They generally work the same as the blanket method but are easier to change/customize. 


Kangaroo care is the BEST! This was my favorite day, first day happy holding.
Once he finally got big enough to do kangaroo care, we started that.  Kangaroo care also helped us avoid NICU head by putting him in different positions and in different angles.  Later on when he was in a crib we also used a Boppy as a positioner.  He continued to use the boppy to sleep in at home, which you shouldn't do unless your LO is on O2 and a monitor, it's right on the bobby not to, it just isn't safe otherwise.
Once we finally got home kangroo care morphed into baby wearing, which I highly suggest for all parents whither you had NICU time or not.  Wearing him in a wrap and later a sling allowed him to be nearby, kept him calm and relaxing for me.  I only retired my sling about a month ago when it got uncomfortable with my pregnancy bump.  He was 19mo and 17lbs.  My sister comfortably wears her much heavier (aka healthy normal termie) 1 year old.
The Plagiocehaly is becoming common in termies is due to the "bucket baby" mentality.   A bucket baby is when parents keep their baby in containers such as the baby carrier/car seat, swings, bouncy seats, strollers and cribs. I firmly believe that car seats should stay in the car... my sister isn't as strict as I am about that.   She has no issues but my niece isn't a bucket baby, a true bucket baby is almost always in some bucket device. Babywearing is a great way to keep that from being an issue and is easier on mom and baby.
Now I'm not saying these devices are bad. Christopher loved his swing in the NICU and loved it some at home. The trick is to use these things sparingly.  Ok... getting off my soap box.

Soo how does his head look after 5.5 months in the NICU?    You would never know he spent months in a bed.
No NICU head. The ears are genetic.. both sides, he didn't have a chance. :P

We Finally Have Interwebs!!!

Thanks for sticking with me during the move!  We are settled in and after a month of fighting with a certain internet company...  we have internet!  I should be able to begin posting regually again and I have  few ideas that ya'll will like.  :)   Until then... some much deserved cutness!


Current Updates:  Currently 25weeks with second pregnancy, who is a girl!  Lil'k does not have a heart defect like big brother! She is also on target with her growth.
I hope everyone had a great Thanksgiving (to the fellow Americans) and a great Thursday (for the non-Americans)!

Don't forget to checkout my new Etsy shop!  Nursing necklaces and ring slings!  http://www.etsy.com/shop/StichinFrog

Friday Happy: Cuteness

I have a silly little boy.   He just got this jumper from his Grandma last weekend.

Details on the new adventure.

Our little family

I have been hinting at the new family adventure for awhile now, and here is what we have going on..

Friday Happy: Can he make it?-part 2

Did you see the video last week?  Well here is part 2 and what happened every other time he tried it... See why we freaked out in the other video?

Aren't guys great?

Friday Happy: Can he make it?

This was recorded at a family get together.  Now.. ask yourself..  Can he make it?


The poor tube did not survive the afternoon.  The last guy is the father of the boy, and the guy in the middle is my DH.

What crazy stunts do the guys in you life pull?

Touched out

I have hit a nursing mom phenomenon...  I'm getting very, very touched out lately.   I about chewed Hubby's head off last night because he wanted to snuggle while watching a movie.  He started snoring in my ear... I wanted to rip his head off so bad... Violent... I know.

Have you ever been touched out? 
Should have seen the "discussion" this sucker sparked.... *Sigh*
I feel like I'm constantly in-demand..

Friday Happy: Baby Giggles

I know... I know... I'm late...  Our computer has been on the fritz.  So, better late than never!!  :D

All right the funny video for the week.   My mother and Lil' C, she knows just how to make him laugh.

How can that not make you smile?  :D
I hope ya'll are having a good day! 

What have you been up to this week? 

My Boys...

But Mommy... I don't wanna wake up for breakfast...
It has been a few long weeks here at the pond... My boys are.. well boys. 
Hubby is still looking for a job, Lil'C is finally learning to scoot.  He can now move all the way across the kitchen. :) 

Hopefully he will be really crawling and walking very soon. 
They are figuring out "rough & tumble" baby games to play together.. mostly it is a game of toss in the air.   Or Hubby will lay on the floor while Lil'C sits on his neck and beeps his nose... repetitively.
We have also realized why Lil'C doesn't like to eat with spoons.. apparently they are to slow.  He prefers to "drink" his meals.  He only wants to drink his food right out of the jar.  Hubby tend to feed him now and he will even hold hubby's hand so that he won't take the jar away.   It's rather funny to watch.

Well I hope ya'll all had a fantastic weekend :)
What do your boys do?

Happy 4th!

To all my fellow American's... Happy independance day!!!!

Time to blow stuff up!  At least that is what will be happening at my house.    Three Pyros with 42 acres to play.... yep.  Stuff blowing up.  Probably gonna set off the potato cannon and a sparkler bomb or two.

What does your family do for the 4th?
The 4th is a perfect day for swimming!
I have noticed that I have TONS of  Austrailian readers and I was wondering... when is ya'll independance day?  Australia is one of those places I have always wanted to visit.. I had a friend years ago who lived there and he said that the kangaroos were like deer are here... a pain in the neck.   I still think they are cool, but I don't have to worry about them totaling my car!
Yeah.. their not really that cute.. source

What is the most annoying animal in your area? 

Friday Happy! : Baby wearing

Found this on The Leaky Boob, it's from Marvelous Kiddo

Oh.. tis funny!  Enjoy!
I love that it allows me to take stairs with no difficulty.  Do you babywear?  What is your favorite thing about it?